Pediatric Transition Portal
American Society of Transplantation

Pediatric Transition Portal

Coming soon: The new and expanded AST Pediatric Transition Portal Website. More information to come!

Transplantation has become a successful treatment for end-stage organ disease due to medical and surgical innovations as well as improvements in health care. Pediatric recipients are becoming long term survivors, with an improved quality of life and excellent outcomes. Although this is always the goal, there are many challenges along the way, particularly during adolescence.

Adolescents and young adults (AYAs) are most vulnerable during transfer from the pediatric setting to adult care. The AYA who received a transplant at a very young age may not have a good understanding of their chronic condition and may also be more dependent upon the adults in their lives for their care.

In addition, adult providers may not have the experience and depth of understanding about pediatric issues that follow the AYA as they transfer to adult care. 

The goal of transition is to prepare the AYA and parents/guardians for a successful transfer to adult care through a comprehensive patient-centered and developmentally appropriate transition program. Completing a transition program should enable the AYA to achieve self-efficacy and optimize their independence to provide self-care to the best of their ability. 

Pediatric Transition Portal

How to use the tools

The Pediatric Community of Practice of the AST has developed several transition tool templates to assist providers in preparing adolescents and young adults (AYAs) and their parents or guardians for this critical transition to adult care.

Each tool is designed as a basic template that can be adapted to the individual transplant center based on their patient population and resources.

The templates are grouped by age from Early to Late Adolescence.

Readiness Assessment Tool

The Readiness Assessment Tool is designed as a qualitative interview format between the AYA and pediatric provider to assess the AYA’s strengths and weaknesses in their knowledge about transplant and in achieving self-efficacy. It can be administered as the entire tool, or by sections based on the goals of the team. The provider’s assessment will then guide educational interventions to help the AYA reach their goals for transition, which can be documented using the Transition Action Plan.

Readiness Checklist

The Readiness Checklist is for providers who prefer a "quick" assessment that is self-administered by the AYA using a short form checklist, rather than a qualitative assessment. This form can easily be used during clinic appointments. The provider’s assessment of the AYA’s comments will be used to guide educational interventions that can be documented through the Transition Action Plan.

Transition Action Plan

The Action Plan can be used to set individual goals for each domain and to guide educational interventions and counseling to help the AYA achieve self-efficacy.

Parent Action Form

This form parallels the Transition Action Plan and will guide the parent/guardian in helping their adolescent achieve independence and improve self-efficacy.

Early Adolescent
(11 - 13)
 
Early Adolescent (11-13)
  • Early Adolescent Readiness Assessment

    This tool employs an interview format for the provider to assess the AYA's weaknesses

    Download
  • Early Adolescent Checklist

    This short self-report checklist ​​assesses the AYA's perceptions of their ​c​are

    Download
  • Early Adolescent Transition Action Plan

    This teaching plan can be used by providers to strategize AYA progress towards achieving self-efficacy

    Download
  • Early Adolescent Parent Action Form

    This form can be used​ by providers ​and​ parent​s​ in helping ​the AYA take an increasing role in their care

    Download
 
Middle Adolescent
(14 - 16)
 
Middle Adolescent (14 - 16)
  • Middle Adolescent Readiness Assessment

    This tool employs an interview format for the provider to assess the AYA's weaknesses

    Download
  • Middle Adolescent Checklist

    This short self-report checklist ​​assesses the AYA's perceptions of their ​c​are

    Download
  • Middle Adolescent Transition Action Plan

    This teaching plan can be used by providers to strategize AYA progress towards achieving self-efficacy

    Download
  • Middle Adolescent Parent Action Form

    This form can be used​ by providers ​and​ parent​s​ in helping ​the AYA take an increasing role in their care

    Download
 
Late Adolescent
(17 - Older)
 
Late Adolescent (17 - Older)
  • Late Adolescent Readiness Assessment

    This tool employs an interview format for the provider to assess the AYA's weaknesses

    Download
  • Late Adolescent Checklist

    This short self-report checklist ​​assesses the AYA's perceptions of their ​c​are

    Download
  • Late Adolescent Transition Action Plan

    This teaching plan can be used by providers to strategize AYA progress towards achieving self-efficacy

    Download
  • Late Adolescent Parent Action Form

    This form can be used​ by providers ​and​ parent​s​ in helping ​the AYA take an increasing role in their care

    Download
 
Transfer Summaries
 
Transfer Summaries

Communication drops during transition from pediatric provider to adult provider. Ensure a smooth transition for your patient by providing this detailed summary.

  • Kidney Transplant Medical Summary

    Download
  • Heart Transplant Medical Summary

    Download
  • Liver Transplant Medical Summary

    Download
 

Transition Resources

Visit our Resources on Transition to Adult Care for literature searches, articles, programs, and more.

This website is made possible with generous support by:

Educational Content Disclaimer: The content, information, opinions, and viewpoints contained in educational materials housed on and linked from the AST web site are those of the authors or contributors of such materials. While the AST and its committees take great care to screen the credentials of the contributors and make every attempt to review the contents, AST MAKES NO WARRANTY, EXPRESSED OR IMPLIED, as to the completeness or accuracy of the content contained in the educational materials or on this website. The reader of these materials uses these materials at his or her own risk, and AST shall not be responsible for any errors, omissions, or inaccuracies in these materials, whether arising through negligence, oversight, or otherwise. Reliance on any information appearing on this site is strictly at your own risk. Read the full disclaimer.